Thursday, January 12, 2017

Our first of many hospital stays

   A wise friend told me to make sure I blog. Not only so people can stay informed, but also so Elijah can look back and read about what he overcame. So if it seems I am too forthcoming with details, its because I want to remember everything... even the pain. I know that sounds weird, but what I have noticed this last week is how strong my son is physically, mentally, and emotionally.. he is downright amazing.

  The second day in the hospital Elijah underwent a minor surgery to place a central line in his chest. I was supposed to be called in to the recovery area after he came out of surgery, but in a rather unfortunate and upsetting turn of events was left in the waiting room for over an hour. When I finally inquired as to why it was taking so long I was told they had already taken him back to the pediatric unit to his room. I burst into tears and took off running towards his room. When I arrived I can tell he is upset and in pain. I immediately tell the nurse he needs pain meds and sit down next to him and he reaches for my hand. I have to pause here and say this hand holding thing is new. Elijah has autism and he is not big on affection, to be honest I am not either, but Elijah has specifically asked me to hold his hand enough times now that it has become natural, now instead of asking he just reaches out and I grab hold. I say to him "Hey it's ok to be mad... I'm mad too, if I could take all of this pain you're feeling and put it in my body I would buddy". He starts crying for the first time since we found out he has cancer, and I cry with him. It only lasts a minute and then he looks at me and asks "Will you please wipe my tears?" and I do.  

 Elijah handled his first round of chemo very well. He was nauseous but never threw up (shout out to peppermint essential oil) He was in pain and worked through it. He was sarcastic at all the right times, a nurse asked him how he was doing as he was doubled over in pain and Elijah responded " Oh I am doing just AMAZING.." :)

We are home now and will start a once a week 4 day chemo treatment for 3 weeks starting January 23rd. Please pray that Elijah's body stays strong and healthy. The dynamic in our family changes drastically when we are gone. It is so weird to not be together. Pray for the other kids as they are forced to adapt as well.

Lastly, I would be remiss if I didn't say how overwhelmed Gus and I are by the show of support we have received. There are nights when we sit on the couch after everyone is asleep and recount all of the many ways we have been blessed by our amazing family and friends. Thank you to everyone who has supported us in any way.. financially, emotionally and prayerfully. We are forever grateful.






 

5 comments:

  1. Claire, we are praying with you and tears are falling along with you. My mom heart weld up when you talked about him wanting to hold your hand now. May God comfort you during this and his healing touch give E strength.

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  2. This post brought tears to my eyes Claire! I am 100% praying for Elijah and your whole family. Thank you for your honesty in your updates and your vulnerability. The bit about the hand holding had me welling up because it's so beautiful. Your strength is exactly what he needs. And the psalms refer to God holding us by our hand so many times that I can't help but see the correlation of Elijah's trust in you being a reflection of how dependent we are on God. I am praying for big miracles for you and your family! All my love, Dri

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  3. Claire, Al and I are praying for him and your family. I understand him wanting to hold your hand, I did the same with Al and wanted him by my side constantly. it's so sweet he reached out to you. Love you guys! ��

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  4. Claire and Gus, We are praying for you and your family. You are like our own family and we love you very much. May the Lord be your strength as you pass through this valley. Ethan and Shiloh are praying for Elijah nightly and "morningly" in their prayers. (love and prayers)- The Carters

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  5. Claire,we just never know what lies ahead on this journey of life do we? Thank you for sharing all of this with us. It invokes reflection and prayer, self evaluation and humbles. God reminds us that we never really know the number of people we touch and affect when we open our hearts, if only in passing. All things work to the good of those who love God. You are a true hero. God continue to hold you all tightly in his arms. Amen

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